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18 小时
on MSN
Avon Lake student enters hospice after suffering from two rare genetic conditions
While most of us are preparing to celebrate the holidays with loved ones, a mother and father are preparing to say goodbye to ...
7 天
on MSN
She has a rare genetic disorder. A pool with a lift is the one thing that can help her
Two years ago, Alexa underwent a corpus callosotomy, a surgery to prevent seizures from spreading from one side of the brain ...
来自MSN
1 天
Who Is Makayla Cain? Netflix Helps Nonverbal Teen Tell Her Story
In a time when the media is filled with gloomy news and grim incidents, Atlanta teenager Makayla Cain is offering inspiration ...
Nature
5 年
Advocates to bring rare disease philanthropy under one umbrella
“The challenge with rare diseases is that they're rare, and there aren't that many families that can raise money,” says Geraldine Bliss, research chair of the Phelan-McDermid Syndrome Foundation.
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