Sanfilippo kids get sick frequently. Pneumonia is what ultimately causes most children with the condition to pass in their teenage years. As Sadie has gotten older, it has become more challenging for her to break up mucus. She occasionally chokes on the mucus, which is dangerous and causes her distress. We will do anything to help our girl, so we advocated for an Airway Clearance Vest. These devices are primarily used for Cystic Fibrosis so it took a while for insurance to approve it for Sanfili